When a
writer can only find time to write his blog every four months then he begins to
understand that he is slowing down with age. And so it is that I can only sit
helplessly by and watch my birthday roll around again. With the pleasant memories
of my 70th still fresh in my mind. I was shocked when Val phoned up
to say that she was arranging a party, this time to celebrate her 80th
on the 13th of November, one day before my birthday. I was happy to
let her take the reins as it was a big one for her. Eighty is quite some
achievement. I doubt whether I will ever crack that milestone. I feel it will
be more of a Millstone in my case, dragging me down into the grave. But she
proved to be a good organizer and a memorable party was enjoyed by all at a
local micro-brewery. The whole place, outside and in, was flat making it an
ideal venue, not only for me and my wheelchair, but also her many octogenarian
friends. Although her guests were mostly old, they certainly knew how to enjoy
themselves, as well as make me feel welcome.
On the 18th
of October 2021 Dynacure held a Zoom report back meeting. The aim of which was
to let all who are interested know how the Dyn101 trials are progressing. There
are in fact two trials in progress. The Dynacure trial is an ascending dose
study which aims to ascertain the ideal dose required. This trial is
progressing smoothly, and they hope to have a result by mid-2022. The Gene
therapy trial which is being conducted by Astellas Pharmaceuticals (formally Audentis) has had a
setback where at least one, maybe three of the 24 people being treated died of
impaired liver function. This is a single dose Genetic treatment that works like
a vaccine. The liver function concerns have understandably led to a delay in the
trial and results are now only expected late 2024. I am not sure that I am
going last that long, what with the way my chest is behaving now. We sympathize
with the Guinee pigs in the current trial and wish them well in the future. My life
and happiness hang on their success or failure. Although I attended the meeting,
I still had to clarify my understanding via email with Lori Gorski, even so, I
am still not sure when a treatment will become available for the man in the
street. I do not think that anybody, not even the trialists can say with any
degree of certainty when relief will come to hand. We simply must hang in until
we are called. The only safe bet is mid-2024 it seems and even that may not be
achievable.
After Bill
passed away, we tried to go to Greytown to hold a memorial service for him, but
the rioters turned us back. The next opportunity that presented was during the
Michaelmas school holidays. That was the first time that Shelbi’s sons, Nicholas,
and Sabastian, could get off school. Riana unfortunately missed the event due
to their dog taking ill at the last moment. Shani and Raymond came down from
Mozambique and in the end some twenty-five of us met at Pat’s place for a
hearty send off. It was good to hear stories that I had never heard before from
people that worked with him. It seems that he was a well-liked and respected
member of the small town of Grootvlei where he last lived and worked
Audrey and
I booked into a B&B, The Lord Grey in Greytown. This was the nearest
thing to disabled friendly accommodation in Greytown, but it was nowhere near suitable.
From the parking lot there are ramps across the front of the old house, up the
side and you are in. Once in everything is flat but a modern shower had been
built too close to the toilet bowl for me to park my wheelchair next to it. I
stayed there some 4 years back and I could manage then, but not anymore. The
shower has a large step up so I could never use that. The bed was luckily the
right height so I could get onto the single bed, but it was a bit too narrow
for me to roll over comfortably in. We had a hearty breakfast the next morning
and left for home without me having had my normal early morning expulsion. I
managed to hold it in till we luckily got home. I say luckily because my car’s
radiator sprang a leak. We only just managed to limp home after stopping for
water at a local service station, which was no more than 10km from home. After
this weekend away both Audrey and I decided that staying at home was a lot
easier than going away. My days of holidaying away from home are well and truly
over now.
As regards
my health, I am well. This is illustrated by the fact that we still have half
of our medical aids daily spend allowance available to us. This has not
happened in the last nine years that Audrey and I have been married. It is normally
depleted by late August or September. I attribute this to the fact that we wear
masks whenever we move about in public. Noticeable is the fact that neither
Audrey nor I have had so much as a head cold, let alone the flu virus these
last two years. The masks and sanitizing of hands certainly help to keep many
of the common viruses at bay.
My breathing
has deteriorated, however. This even more so as the hot summer months approach.
When it gets hot my sinuses seem to block up. So much so that I recently had to
buy a nasal decongestant, Otravin. It works a treat but cannot be used for more
than ten days at a stretch. Luckily, I have not needed to use it continuously
yet. We are still in the cool rainy period of spring. I fear for the very hot
summer months though. The dry months of January and February are the hottest
and many older, especially overweight people complain that they cannot breathe
properly. I will be joining them this year.
Sleeping is
the bad time. If I get too hot during the day, I find that moving outdoors
seems to relieve the symptoms. I am not clear on why this should be. When I am
sleeping however, I seem to do well up until 3am. Then I wake up, cannot breathe
freely, and cannot get back to sleep. Very bad. A blast of Astavent, also known
as rescue, is all that helps at this time.
I am still
trying to find someone that can build a prototype of my invention for me. A few
months ago, everyone was crying out for work. At the height of the pandemic,
factories were shutting their doors, laying off staff and pleading poverty. Now
that I need someone to build my mobi they are all up to their eyeballs in work
and cannot even consider taking on more work. If they do look at it then the
prices that they are quoting to build it are insane. Just my luck. If only I
had acted earlier. But still, I must not give up hope. I am sure there is
someone out there that can help me.
My other
big news is that both Stephanie and Paul are coming to visit me early December.
Paul left for the UK in August 2018. That is more than 3 years ago. Stephanie
left even earlier. The pandemic has prevented them from coming home sooner, but
things are looking up and they will be home soon. I am super excited. Seeing
them in the flesh and getting a hug from them will be mind-blowing.
But
breaking news, 26th of November is that the UK has put SA on their
red list again and as of today no flights from SA will be able to land in the
UK. The red list is only reviewed every 3 weeks, no exceptions and Paul is due
to fly in 6 days-time. Worse is that he only has 9 days leave and is thus due
to return on the 11th of Dec. The first review is due the 17th.
He will thus be forced to cancel his trip. I am super pissed-off. Stephanie has
suffered the same fate. Cyril addressed the nation on Sunday 28th
November and left matters as they were. (Stage 1 lockdown) The 4th
wave virus, now named Omicron has not spread as far and fast as was expected
and the symptoms of those infected are proving to be mild. We need more time
for a clear picture to emerge. It now seems possible that the UK acted rashly
and may even lift their travel ban to and from SA much sooner than expected.
Here is hoping that we still get to see S and P before Christmas.
Poor Audrey
has booked a seven-day holiday at Golden Harvest whilst the children are here
to look after me. She deserves and desperately needs a holiday away from me. I
am not very demanding, but she does all the work around the house, putting on
my stockings in the morning, preparing all the meals, making the beds, cleaning
the house, tending the garden then taking my stockings off again at night. She
deserves a holiday. If Covid keeps my kids at home, then I will need to make
some other plan. Kiara, her 18-year-old grand-daughter has just written matric
and is currently without employ. I think I have my answer.
Till next
time. I wish you all a Merry Christmas and a healthy and prosperous New Year.
Just keep dodging the old Corona virus.